Related Information
EHMA Newsletter, 2 January 2013 PDF Print E-mail

More information can be found here.
Cancer World Newsletter - Lungscape: a living lung laboratory PDF Print E-mail
Is this the shape of trials networks to come? As more and more acronyms are added to the
alphabet soup of mutations known to play a role in some lung cancers, a group of 14 European
centres plus one from the US and one in China have clubbed together to accelerate progress
in learning about which therapeutic strategies work best in which molecular subtypes.

 What do you think?

  • Does the future lie in running multiple clinical trials of around 50 patients from small
    well-defined molecular subsets?
  • Could this template work in other cancers?
 You can read the article here. Press the comment button at the end and share your views.

EHMA Newsletter, 19 December 2012 PDF Print E-mail
The new EHMA Newsletter, covering topics such as TCN Webinar on new realities in healthcare and much more, can be viewed here.
Cancer World Newsletter - e-Grandround OECI accreditation: is yours a top-class cancer centre? PDF Print E-mail
If you believe excellence can only be achieved through rigorous performance evaluation,
but you are uncomfortable at the thought of outsiders passing judgement on your place
of work, this egrandround is for you. It explains how the accreditation process run by the
Organisation of European Cancer Institutes works, who does the evaluation, and why
growing numbers of cancer centres, comprehensive cancer centres, cancer units, and
even governments, are welcoming this initiative.

What do you think?

  • Will wider use of accreditation raise the quality of cancer care and translational
    research in Europe?
  • Could independent verification of performance help your cancer centre justify its
    budget to health authorities and other funders?
 You can read the article here. Press the comment button at the end and share your views.
Cancer World Newsletter - Best Cancer Reporter PDF Print E-mail

The origins of a special success

Read the article that won its author, Clive Cookson of the Financial Times, a Best Cancer
Reporter Award for the clear insight it gives into how cancers behave, and why new approaches
to treatment hold great promise despite the relatively poor results most have shown so far.

What do you think?

  • Are articles like this one helpful to patients and families who want to play an informed role in decisions about their treatment and care?
  • Does good reporting of cancer get the recognition it deserves in your country?
You can read the article here.
Health EU-newsletter PDF Print E-mail
Health EU-newsletter presents the latest version of its newsletter.

To see the newsletter, please click here.

The EU Paediatric Medicines Regulation PDF Print E-mail
The EU Paediatric Medicines Regulation came into force on 26th January 2007, aiming to provide better medicines for children. This Regulation is based on rewards, incentives and obligations for pharmaceutical companies; its intention was to accelerate the development of drugs for paediatric diseases, such as malignancies, with no expected direct return on investment for pharmaceutical companies. Warmly welcomed by the paediatric community, the Regulation was expected to facilitate access to anticancer drugs, which are in development in adults and to significantly increase the number of those drugs in clinical development for children and adolescents in Europe. However, the number of new oncology drugs in paediatric development remains low in Europe. There is still a 10-fold difference between Europe and the US in the number of new anticancer drugs available for clinical research.

The European Commission recently consulted stakeholders on whether the Regulation is delivering, which will feed into its ‘Five Year Report’ to the European Parliament and Council. View the Consultation.

SIOP Europe and other relevant stakeholders have responded to the Public Consultation. View our response.


SIOPE is the Work Package Leader for 'Dissemination' of the EU-funded, FP7 network of excellence, ENCCA - the European Network for Cancer research in Children and Adolescents – www.encca.eu

Follow SIOPE and ENCCA on Twitter and LinkedIn group and company pages
EUREGHA news on EPAAC, December 2012 PDF Print E-mail
Current Activities

Cervical Cancer Screening Workshop - October 2012

During 8 and 9 October, the second regional workshop from WP6 [Early Diagnosis and Screening] took place in Padova, Italy.  The workshop, hosted and organised by the Veneto Oncology Institute, discussed the current debates surrounding the implementation of population based screening programmes for cervical cancer.

The workshop took place in the ancient surroundings of the University of Padova.  Keynote speeches at the event were given on: 

  • 'The Development and Implementation of European Cervical Cancer Screening Guidelines' [Dr Guglielmo Ronco, Centre for Cancer Prevention, Torino, Italy]; and
  • 'Cancer Screening and Health System Resilience' [Dr. Ahti Anttila, co-Lead of EPAAC WP6, Finnish Cancer Registry, Finland].
To download the workshop report and to access the presentations made during the workshop, please visit HERE.  

Through this link you can also find information from the previous workshop on colorectal cancer screening, which was held in Liverpool UK during March 2012. 

More information about the workshop activities can be found on the EUREGHA work stream homepage.

Forthcoming Meeting: Consultation on the Revision of European Code Against Cancer

The European Cancer Leagues, as EPAAC Health Promotion and Prevention work package lead partner, are organising a consultation meeting in conjunction with IARC to collate feedback on the current European Code Against Cancer.  The forthcoming meeting will discuss how communicating the new revision of the Code can be improved.

The meeting will take place on 12 December from 11:00 to 15:30 in Brussels.  Partners from the EPAAC are invited to participate.

To find out more detailed information on how to apply, please visit the European Cancer Leagues website or please email This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

You are invited to provide input into the European Code Against Cancer by completing a short survey accessible at the following link: http://www.surveymonkey.com/s/ECAC

Input requested: Quality Criteria for Health Checks

One of the key outcomes of the EPAAC early diagnosis and screening work will be to develop an initial consensus on pan-European quality criteria for health checks and periodic health examinations.  This work is led by Foundation Nederland Normalisatie Instituut (NEN) and builds upon the good practice from the Netherlands.

As part of this work, NEN has released the draft Workshop Agreement for Quality Criteria for Health Checks (CWA). The CWA describes the basic principles of quality criteria for health checks and has been developed by a group of 36 experts from 16 European countries.  To see the CEN Workshop Agreement Quality Criteria for Health Checks, please click here.

Quality criteria for Health Checks aim:

  • to allow clients to make informed choices about health checks,
  • to improve beneficence in prevention and early detection of health risks and disease,
  • to protect individuals against potential adverse consequences (maleficence) of health checks and
  • to ensure the quality of the health checks.
Experts are invited to comment on the draft document by 26 December 2012 by using the website www.normontwerpen.nen.nl. For guidelines in how to the use this site in English, please click here.

NEW European Cancer Observatory

Launched in August 2012, the European Cancer Observatory (ECO) is a project developed at the International Agency for Research on Cancer (IARC) in partnership with the European Network of Cancer Registries (ENCR) in the framework of the EUROCOURSE project supported by the European Commission.

The ECO web site is a one-stop shop that permits unique, easy access to data on cancer incidence, prevalence, mortality and survival in 40 European countries. ECO
will be a valuable tool for policy-makers, medical and research professionals as well as civil society.  The ECO platform provides a comprehensive system of information on cancer burden in Europe across three web sites: EUCAN national estimates, EUREG registry data and EUROCIM downloadable data.

To visit the ECO please click HERE.

EPAAC Steering Committee meets in Athens, September 2012

The EPAAC steering committee, of which EUREGHA is a member, and advisory group meetings took place in Athens during 25 and 26 September 2012.

Amongst the key topics that were discussed were:

European Cancer Information System (ECIS): One of the main tasks of the EPAAC Work Package 9 (WP9) is to propose a strategic reorganisation of the data and information flow, aimed at better supporting cancer control and cancer research activities. The WP9 proposal for the development of the ECIS has been discussed at length in the EPAAC [and amongst relevant stakeholders] during the recent Open Forum in Rome and at key meetings, such as that of the ENCR in Cork 19-20 September 2012.  Details on the final proposal are currently being fine-tuned with a view for release early 2013.  For more information, please contact  This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

National Cancer Plans: The EPAAC Steering Committee agreed to publish the final version of the Report on National Cancer Control Programmes on the EPAAC website - www.epaac.eu.  The publication is one of the key deliverables of EPAAC as it aims to establish the state-of-play in the development of National Cancer Plans in the EU.  The remainder of the work package on National Cancer Plans will focus on conducting an analysis of the content and an evaluation of the effectiveness of the existing plans and seek to facilitate the transfer of knowledge and expertise obtained on the design, challenges encountered, implementation and outcomes of National Cancer Plans between the EU Member States. 

To access the report, please visit HERE.

Possible future joint action on comprehensive cancer care: A possible future joint action on comprehensive cancer care was presented at the Steering Committee meeting.  Once approved by the internal processes of the EC, the joint action will be published in the upcoming 2013 work programme of the EU Public Health Programme.

To access the key documents from the meeting, please visit HERE.  

For more information, please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Upcoming Opportunities

Over the coming months, there are a number of activities planned and opportunities available under the EPAAC or offered by EPAAC partners.

SAVE THE DATE: 3-4 June 2013, Breast Cancer Screening Workshop, Brussels




TO REGISTER YOUR INTEREST IN PARTICIPATING, OR FOR FURTHER INFORMATION, PLEASE CONTACT SOL WALLYN: This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Future EUREGHA Cancer Working Stream Meeting

The next Brussels-based meeting of the EUREGHA work stream [formerly working group] is planned to take place following the breast cancer screening workshop in Brussels on 3-4 June 2013.

The provisional focus of the meeting will be 'communicating population-based cancer screening programmes'.  To register your interest, or for further information, please contact David Ritchie: This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

IARC Summer School in Cancer Epidemiology - 2013

IARC is organising a series of training modules in 2013 on Cancer Registration and Cancer Epidemiology.

Two modules will be held from 17 June to 5 July. The first module (Cancer Registration: Principles and Methods) lasts one week and the second module (Introduction to Cancer Epidemiology) two weeks.

CANCER REGISTRATION: Principles and Methods (one week, 17-21 June)

Population-based cancer registration is a basic element of cancer control, making possible the rational use of resources as well as the identification of areas in need of research. In many parts of the world, cancer registries provide the only source of information on the size, nature and evolution of the local cancer problem.


The course will focus on the practical application of epidemiological principles and methods to the various cancer control activities, ranging from the search for the causes of cancer to the implementation and evaluation of control programmes.

For more information, please visit HERE.

Contacts & Further Information

Remember to 'Like' EPAAC!

Various communication and dissemination tools have been developed for the EPAAC by the project's lead partner.  These include the innovative use of social networks and media, which seeks to promote positive health messages to the general public and encourage the wider dissemination EPAAC activities.

To find more, please visit the following links:

EPAAC website

EPAAC twitter feed

EPAAC facebook page

EPAAC Linkedin group

If you have any specific questions about the EPAAC or the associated EUREGHA cancer work stream, then please do not hesitate to contact us.

David Ritchie

EUREGHA cancer work stream coordinator 

This e-mail address is being protected from spambots. You need JavaScript enabled to view it

EU Health Specialist
North West Health Brussels Office

E: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
T: 0032 (0) 2 229 53 86
Website: www.northwesthealth.eu 
Twitter: @NWhealthEU

Cancer World Newsletter - Late diagnosis: Why does it happen? How can we do better? PDF Print E-mail
When GPs fail to identify symptomatic cancers on time it can be fatal for patients and
frustrating for the specialists who treat them. In this Cross Talk article, GP Tina Eriksson
and gastrointestinal cancer specialist Eric Van Cutsem exchange views on why this is
such a problem and what can be done about it.

What do you think?

  • How big a problem is late diagnosis in cancer?
  • What more can be done to help GPs narrow down which patients need closer
    examination and make it easier to refer them for further diagnostic tests?
You can read the article here. Press the comment button at the end and share your views.
Cancer World Newsletter - Cutting Edge, Testing the testers PDF Print E-mail
Can we trust the pathology reports that doctors and patients rely on to choose personalised
therapy options? This Cutting Edge looks at the things that can go wrong, and at some quality
control initiatives that aim to make sure they don’t.

What do you think?

  • Can you be certain about the quality of the pathology reports that you rely on?
  • Is a more systematic approach to quality control required as more and more biomarkers
    become relevant to treatment decisions?
 You can read the article here. Press the comment button at the end and share your views.


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